Health
Neurologist advocates more awareness on Parkinson’s disease
A consultant neurologist, Dr Agabi Osigwe, has called for more awareness and training on the symptoms of Parkinson’s disease to ensure early and accurate diagnosis to enhance patient’s treatment.
Osigwe, a staff of the Lagos University Teaching Hospital (LUTH), said this in an interview on Tuesday in Lagos.
He made the call in commemoration of the World Parkinson’s Day celebrated annually on April 11 to bring attention to the medical condition.
Parkinson’s disease is a brain disorder that causes unintended or uncontrollable movements, such as shaking, stiffness, and difficulty with balance and coordination.
Osigwe said that people with Parkinson’s experience stigma when there is ignorance about the disease, myths and misconceptions about its cause.
“I have been involved with managing Parkinson’s actively for about 30 years, the challenge has been that many patients move from one place to another before finally getting a correct diagnosis.
“This can be corrected by improving awareness and training so the symptoms are recognised earlier and the patients are referred to a neurologist early,” he said.
Osigwe said access to medication was also a challenge as the drugs are relatively expensive and unaffordable for the majority of the patients.
“We have been particularly privileged at the LUTH Movement Disorders Clinic to have a philanthropic organisation, the Farah Foundation, provide the main drug for treatment (levodopa/carbidopa) for our patients who cannot afford the drug,” he said.
He said that getting around or participating in society where the infrastructure does not accommodate their disability was a challenge to the patients.
“Parkinson’s is a misunderstood disease and lack of awareness makes people with Parkinson’s vulnerable and discriminated against.
“People with Parkinson’s earn less money, have difficulty obtaining and retaining employment despite qualifications and ability. They often have to retire early.
“Due to the symptoms of the disease, many are often mistaken for being intoxicated and in some countries they are thought to be cursed by witches.
“Parkinson’s can mean living in constant pain. They often lose their voice, their confidence, the luxury of sleep and their ability to control their automatic functions, their limbs, and their future,” he said.
To address the challenges of Parkinson’s disease, Osigwe said that a special clinic for Parkinson’s disease and other Movement Disorders was established at LUTH over 10 years ago.
He said through the clinic, they have been able to provide specialist services diagnosing and treating Parkinson’s disease to hundreds of patients.
Osigwe said they have also led the training of doctors, nurses, and physiotherapists in the special requirements for managing Parkinson’s.
Parkinson’s research in the country and in West Africa,” LUTH was participating in several collaborative research studies to contribute to the global effort to find a cure to the disease.
“We are part of a global effort known as the GP2 (Global Parkinson’s Project) leading the search to understand the genetic basis of Parkinson’s disease.
“We have nearly 40 neurologists from across Nigeria within our network known as the Nigeria Parkinson’s disease research network, and are hopefully going to help discover clues that will lead to better treatments for Parkinson’s,” he said.
Osigwe said the institution was also part of the Parkinson Progression Markers Initiative (PPMI) project, funded by the Michael J Fox Foundation for Parkinson’s research in the U.S.
He said that the PPMI study was a huge effort that brought together researchers and participants at about 50 clinical sites across the world.
“Parkinson’s is a progressive disorder and the main focus of the PPMI is to identify signals in people with Parkinson’s (what we call biomarkers) that determine how the disease progresses, as a major step to then developing treatments to slow or even stop progression.
“We are involved in this study as the only Africa site and are open to welcoming people with early Parkinson’s to be a part of the study,” he said.
Osigwe said that the institution was starting the Transforming Parkinson’s Care in Africa (TRAPCAF) study that involved researchers in seven African countries in collaboration with Newcastle University, United Kingdom.
He said that the research was funded by the UK National Institute for Health and Care Research under its Global Health Research Unite initiative.
“We will be conducting prevalence studies to properly document the frequency of Parkinsons in the community, studying the risk factors for Parkinson’s in Africa, and other aspects such as understanding the lived experiences of people with Parkinson’s in Africa to help support them better,” he said.
Osigwe appealed to policy makers to acknowledge the social, economic and cultural impact of Parkinson’s and develop policies to reduce the negative impact on patients.
“As we celebrate World Parkinson’s Day, we urge policy makers to improve the access to essential medicines for Parkinson’s care.
“They should also improve access to health care professionals by expanding training, employment and retention of such health workers,” he said.
He appealed to individuals, the media and social media enthusiasts to learn about Parkinson’s disease and assist promote awareness about the disease.
Kano State House of Assembly has passed a bill for a law to compel intending couples to undergo HIV, hepatitis and sickle cell anaemia screening before marriage.
The passage followed deliberations in the Committee of the Whole House during plenary session,
presided over by the Speaker, Ismail Falgore on Monday in Kano.
After deliberations, the lawmakers approved the 3rd reading of the bill, read by the Deputy Clerk, Alhaji Nasiru Magaji.
Shortly after passage of the bill, the Majority Leader of the house, Lawan Hussein (NNPP-Dala), stated that “any person
intending to marry shall first submit self for medical examinations.”
He said the bill was considered and passed after the 3rd reading, following various legislative processes.
The leader further said that the bill was passed because the state had been battling with different health issues, including
HIV because people go into marriages without medical screening.
He said that the bill, if signed into law, would save many lives and curb the spread of life-threatening diseases.
“The bill will safeguard the health of citizens by institutionalising pre-marital testing to check the spread of diseases
like hepatitis, HIV and sickle cell anaemia,” he added.
The World Health Organisation (WHO), says it plans to commence vaccination against Human Papilloma Virus (HPV) on May 27 in Kogi.
The state’s Team Lead of WHO, Dr Muktar Toyosi, said this when he led his team on an advocacy visit to the State Council of the Nigeria Union of Journalists (NUJ) on Wednesday in Lokoja.
Toyosi said that the vaccination was meant for girl child of between the age nine and 14.
He said the ongoing sensitisation was to keep the people informed, and educate them on the vaccination of their children to protect them against cervical cancer in future.
”Kogi falls within the second phase of the programme. We are soliciting for the cooperation of the media in educating the people of the state on the HPV vaccination.
“There need for girls child across the state to take the vaccination to safeguard their future.
“Although the vaccine was initially scarce and difficult to get, the good news now is that it has been made available by the government,” Toyosi said.
Also speaking, the State Technical Assistant for WHO, Dr Ahmed Attah, said that the HPV mostly affect women, adding that the vaccination remained a preventive measure against the disease.
Attah, a former state Chairman of the Nigeria Medical Association (NMA) and a former Chief Medical Director (CMD), Kogi Specialist Hospital (KSSH) Lokoja, urged parents and guardians to avail their children of the vaccination to justify government’s investment.
In his response, the Kogi NUJ Chairman, Mr Seidu Ademu, described the health sector as very critical, stressing that the vaccination was a right step in the right direction.
Ademu promised a robust partnership with WHO to enable the team to achieve its set goals.
He stressed the need to inform, educate and sensitise the general public on the need to embrace the vaccine by ensuring that girls within the age range were vaccinated.
The World Health Organisation (WHO) says Non-communicable Diseases (NCDs) will become the leading cause of mortality in Africa by 2030 if urgent measures are not executed by member states.
Dr Matshidiso Moeti, WHO Regional Director for Africa, joining virtually, made the assertion on Tuesday at the opening of the first International Conference on PEN-Plus in Africa (ICPPA 2024) in Dar es Salaam, Tanzania.
The ICPPA 2024, holding from April 23 to April 25, is aimed at addressing severe NCDs in Africa.
It is being hosted by the WHO Regional Office for Africa, Helmsley Charitable Trust, and the United Republic of Tanzania. Moeti urged member states to embrace strategies that would help to address the issue.
“We are faced with non-communicable diseases and data from low and middle income countries show that 26 per cent of total health spending was due to NCDs, second only to infectious and parasitic diseases.
“Meaning it is urgent to give these often overlooked diseases priority attention as Africa is severely affected and more than in any other place in the world.
“The surge in the burden of NCDs on our continent over the past two decades, is driven by increasing incidences of risk factors, such as unhealthy diets, reduced physical activity, obesity, and air pollution.
“NCDs are set to overtake communicable, maternal, neonatal and nutritional diseases combined as a leading cause of mortality in Africa by 2030.
“And here, the NCDs are called silent epidemics. Unfortunately, this rapid devolution, with a higher mortality rate has not been recognised in the region, because we’re not investing adequately in detecting and lowering the burden of these diseases,” Moeti said.
Moeti noted that severe NCDs like type one diabetes, rheumatic heart disease, and sickle cell disease more frequently affect children and young adults in the majority of Africans population.
She advised that Africa must show increased commitment in addressing NCDs with adequate and sustained resources.
She also said there was the need to strengthen accountability and assess the impact of interventions by enhancing surveillance and monitoring.
According to Moeti, this can be achieved using reliable and timely data at national and sub national levels to drive policy and action as we move forward.
Ms Elke Wisch, UNICEF Representative to Republic of Tanzania, said that collaboration was at the heart of collective response to tackling NCDs.
“Today’s gathering underscores the urgency and importance of addressing NCDs comprehensively and collaboratively.
“The WHO package of essential non communicable interventions for PEN, for primary healthcare and low resources settings, and the recently launched regional strategy on PEN-Plus provides a strategic framework for tackling NCDs at their roots,” she said.
Also speaking, Ummy Mwalimu, Minister of Health, Tanzania, said that non communicable diseases NCDs, have become a formidable threat to the health and wellbeing of “our people.”
She urged for collective efforts to address these threats.
“They are silently affecting the lives of our citizens, our communities, undermining the progress we strive to achieve as a nation.
“The impact of these diseases extends beyond individual suffering.
“It affects our communities, our economy, and ultimately the future of our nations in our continent.
“Yet, in the face of these challenges, we are not discouraged together. We have chosen to confront these non-communicable diseases.’’
She urged for lifestyle change as positive way to combatting the negative outcomes of NCDs.
James Reid, Programme Officer for the Helmsley Charitable Trust’s Type 1 Diabetes (T1D) Programme, said he was happy at the level of interest and momentum in engagements to address NCDs, especially Type 2 diabetes.
He, however, identified finance as one of the biggest challenge and hindrance. He said that while political leaders and stakeholders identify the challenges that NCDs pose, the strategies to prevent them, especially NCD care, were limited.
“Leadership for driving of PEN-Plus is very important to make sure that ministry of health leaders and all others involved, really understand how to change the dynamics as well as adopt solutions to suit specific localities,” she said.
WHO’s PEN-Plus (Package of Essential NCD-Plus), is a regional integrated care delivery strategy to address severe non-communicable diseases at first-level referral health facilities.
At the 2022 WHO Regional Committee Meeting for the African Region, the 47 Member States of the AFRO region voted to adopt the PEN-Plus strategy.
It is focused on alleviating the burden among the poorest children and young adults. This is by increasing the accessibility and quality of chronic care services for severe NCDs including Type 1 diabetes, rheumatic heart disease, and sickle cell disease.
ICPPA 2024 provides opportunity to shore up international support for scaling up PEN-Plus in the African Region. Also, the conference serves as a platform to raise awareness of severe NCDs, share lessons from countries implementing PEN-Plus and identify opportunities to strengthen NCD management.
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